November 20, 2019
Bob Wright’s odyssey with the federal research bureaucracy began fifteen years ago with autism. Autism diagnoses were skyrocketing, with no scientific explanation. Families, including his, were searching for answers.
There was no urgency to address the causes, treatments and supports needed. No national strategy to manage the economic and emotional cost to families across the country. It was his first window into the mindset of the government health agencies. What was the rush?? #RoadToHARPA
June 25, 2018
A segment from “The Patients Are Waiting: How HARPA Will Change Lives Now”
November 19, 2019
November is Pancreatic Cancer Awareness Month. Each day, 151 people are diagnosed with this deadly disease. The survival rate has not improved in 50 years. It is time for action.
In 2016, Suzanne Wright was one of the 46,000 people who died of pancreatic cancer that year, just nine months after her diagnosis. @BobWrightNBC established this Foundation to drive urgency and action in the fight to develop an early detection test.
There is no engine in the federal research system to do this now. HARPA is a revolutionary apparatus that would develop capabilities to improve and save lives now. It is modeled after DARPA, the gold standard for innovation, which is what this disease needs!
Millions of patients are waiting. This is why we will never stop fighting. This month, we will be sharing a social media thread that details Bob Wright’s history of breaking down institutional barriers and the road to establishing HARPA. Follow along here or on social media at #RoadToHARPA
January 9, 2018
New American Society data reveals that despite falling cancer rates, pancreatic cancer death rates continue to rise.
Only 9% of pancreatic cancer patients live 5-years or more.
The current approach is NOT working.
We need HARPA to develop capabilities for disease detection, treatments & cures.
November 15, 2018
FoxBusiness.com published an op-ed written by our board member, Sandi Wright, about the economic and societal benefits of HARPA, the Health Advanced Research Projects Agency.
Here is a brief excerpt:
“We all have something to gain from the success of an innovative health establishment that is required to push the boundaries of modern research and treatment. Even though DARPA’s mission for the last 60 years has been to develop capabilities for national security, its collaborative research led to household products as profound as the Internet and as superficial as the Roomba. What might exist in 60 years because of HARPA: a pill that prevents cancer? Eye drops that make UV light visible? An immunotherapy treatment to thwart pancreatic cancer for those identified to be at risk?” – Sandi Drucker Wright