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The Road To HARPA - Post #12

December 18, 2019

Congress passed the 21st Century Cures Act late in 2016. The legislation is designed to help accelerate medical product development and bring innovations and advances to patients who need them faster and more efficiently.

HARPA would deliver on that promise. The Suzanne Wright Foundation will continue to advocate for its creation. The research is sitting on shelves and HARPA will drive innovations that will save lives NOW! #RoadToHARPA

Launching HARPA

June 25, 2018

A segment from “The Patients Are Waiting: How HARPA Will Change Lives Now”

The Road to HARPA - Post #11

December 17, 2019

The NIH is in the business of understanding the biology of disease. They do not develop detection tests and they don’t cure disease.

Despite the lack of any progress with pancreatic cancer, they continue to chug along with the same approach. Any other business with the same failing results for 50 years would be forced to shut down or start over.

Lessons from business and years of autism work taught Bob Wright the best way THROUGH is AROUND. The question with this situation was, who else needed a new approach??
Our pancreatic cancer army would never be large enough to influence the change we need. ALS, Alzheimer’s, and glioblastoma have no early detection tests or curative treatments, either.

It was time to Demand A New Approach for the many conditions that do not benefit from the slow, conservative, bureaucratic status quo research model. #RoadToHARPA

Suzanne Wright's Birthday

December 16, 2019

Today would have been Suzanne Wright’s 73rd birthday. She died only 9 months after her pancreatic cancer diagnosis.

We lost an incredible advocate, too soon. In her honor, we Demand A New Approach to this deadly disease.

#RoadToHARPA

The Road to HARPA - Post #10

December 13, 2019

Like most people diagnosed with pancreatic cancer, Suzanne died within 9 months. 85% of patients are diagnosed at stage 4, making them ineligible for clinical trials. With so few survivors, the army of advocates is tiny. Understandably, families grieve and move on.

There are wonderful organizations focused on research and there is a dedicated stable of scientists and clinicians at top medical institutions across the country. But Bob Wright soon realized outside firepower was required to get the NIH and the federal government to take a bold new approach to the deadliest cancer. The mission needed more allies. #RoadToHARPA

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