LATEST NEWS

Our Report on HARPA

May 11, 2021

The Suzanne Wright Foundation proposed the establishment of HARPA in 2017 to address pancreatic cancer and other diseases that have not benefitted from the current system. We have been relentless in our efforts ever since. In addition to our advocacy with the last administration, our team worked closely with the Biden campaign throughout 2020 to be sure that HARPA became a priority in a new administration.

We are proud to update you with the news that President Biden has announced his support for an Advanced Research Projects Agency for Health (HARPA). You can read about the President’s announcement in his joint address to Congress on April 28, 2021 HERE. The President has formally proposed $6.5 billion in the FY 2021-2022 budget for the agency and Congress is currently reviewing this proposal.

In order for HARPA to deliver on its potential, it is essential that it is structured like DARPA – operating as an independent agency with urgency, accountability and results. HARPA would leverage discovery-based research at the NIH, Department of Defense and other federal agencies, while catalyzing the private sector to drive meaningful innovation that will save millions of lives and billions of dollars.

Patient advocacy groups and industry leaders across the field have joined our efforts. During these critical months of budget negotiation, we remain focused on establishing HARPA as an agency that can hit the ground running and deliver results for the millions of patients and their families who have been waiting.

You can read a Fast Company article about our Foundation’s contribution to this effort HERE.  As always, thank you for your continued support.

Launching HARPA

June 25, 2018

A segment from “The Patients Are Waiting: How HARPA Will Change Lives Now”

Meet HARPA, the bold way Biden can jump-start health innovation

February 12, 2021

The Biden administration is contemplating creating a research agency to help fund breakthroughs that aren’t economically viable for big health and pharmaceutical companies. Meet HARPA.

The Road To HARPA - Post #12

December 18, 2019

Congress passed the 21st Century Cures Act late in 2016. The legislation is designed to help accelerate medical product development and bring innovations and advances to patients who need them faster and more efficiently.

HARPA would deliver on that promise. The Suzanne Wright Foundation will continue to advocate for its creation. The research is sitting on shelves and HARPA will drive innovations that will save lives NOW! #RoadToHARPA

The Road to HARPA - Post #11

December 17, 2019

The NIH is in the business of understanding the biology of disease. They do not develop detection tests and they don’t cure disease.

Despite the lack of any progress with pancreatic cancer, they continue to chug along with the same approach. Any other business with the same failing results for 50 years would be forced to shut down or start over.

Lessons from business and years of autism work taught Bob Wright the best way THROUGH is AROUND. The question with this situation was, who else needed a new approach??
Our pancreatic cancer army would never be large enough to influence the change we need. ALS, Alzheimer’s, and glioblastoma have no early detection tests or curative treatments, either.

It was time to Demand A New Approach for the many conditions that do not benefit from the slow, conservative, bureaucratic status quo research model. #RoadToHARPA

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